Norway
Republic of Korea

Australia

Name of group: Healthtalk Australia
Organisational base: Monash University, University of Sydney, University of New South Wales.
Web Address: healthtalkaustralia.org
Established: 2012
Modules completed: Depression and recovery, Living with multiple medicines, Emotional experiences of early parenthood, Experiences of ageing
Modules in progress: Supported decision making and mental health, Experiences of addiction, treatment and recovery

Canada

Name of group: Health Experiences Research Canada
Organisational base: St. Mary’s Research Centre, St. Mary’s Hospital
Web address: www.healthexperiences.ca
Established: 2010
Modules completed: caregiving
Modules in progress: breast cancer

Czech Republic

Name of group: DIPEx Czech Republic
Organisational base: Olomouc University Social Health Institute (OUSHI), Palacký University Olomouc
Web address: hovoryozdravi.cz
Established: 2015
Modules completed: Health and lifestyles of seniors
Modules in progress: Quality of life of palliative patients, Spirituality and health in adolescents and adults in the Czech Republic, Breast Cancer

Germany

Name of group: DIPEx Germany
Organisational base: Universities of Freiburg and Göttingen
Web address: krankheitserfahrungen.de
Established: 2008, website launch 2011
Modules completed: type 2 diabetes, chronic pain, epilepsy, chronic inflammatory bowel diseases
Modules in progress: breast cancer, prostrate cancer, colorectal cancer, rehabilitation

Israel

Name of group: The Israeli Center for Qualitative Research of People and Societies
Organisational base: Ben Gurion University of the Negev
Web address: in.bgu.ac.il/en/icqm/Pages/BGU-DIPEx-Israel.aspx
Established: 2013
Modules completed: Chronic Pain

Japan

Name of Group: DIPEx Japan
Organisational base: Non-profit organisation
Web address: dipex-j.org
Established: 2007 (website launched 2009)
Modules completed: breast cancer, prostate cancer, dementia (individuals and family members), bowel cancer screening
Modules in progress: clinical trials, chronic pain, oral health & care

|Republic of Korea

Name of group: DIPEx Korea
Organisational base: Department of Humanities, Seoul National University
Web address: healthstory4u.co.kr
Established: 2007
Modules completed: diabetes, breast cancer, stomach cancer, depression, hospice care
Modules in progress: dementia

Netherlands

Name of group: Praten Over Gezondheid (Talking About Health)
Organisational base: Stichting PratenOverGezondheid
Web address: pratenovergezondheid.nl
Established: 2013
Modules completed: dementia – patient and carer perspectives
Modules in progress: type 2 diabetes, chronic kidney disease, rare diseases, visual impairment, metastatic breast cancer, palliative care for children.

Norway

Name of group: Helsesnakk, DIPEx Norway
Organisational base: Norwegian centre for e-health research
Web address: helsesnakk.no (coming soon)
Established: 2015
Modules in progress: Muscular diseases (pilot module), Mental health – patient and carer perspectives.

Spain

Name of group: DIPEX Spain
Organisational base: Non for profit scientific society according to the Spanish law
Web address: dipex.es
Established: 2010
Modules completed: diabetes, palliative care (patients’ perspective)
Modules in progress: palliative Care (family and relatives’ perspectives) hypertension, reproductive technologies

United Kingdom

Name of group: DIPEx Charity
Organisational base: Registered UK charity
Web address: healthtalk.org
Established: 2001
Modules completed: 90+ conditions covered!

USA

Name of group: Health Experiences Research Network
Organisational base: University of Wisconsin-Madison; Johns Hopkins University; Oregon Health and Sciences University; Yale University
Web address: healthexperiencesusa.org
Established: 2014
Modules in progress: Young Adults’ Experiences with Depression; Traumatic Brain Injury in Veterans (pilot module)